Chairman:

Erik Verbunt

Teun’s father

I’m Erik, Teun and Pepijn’s father. As a father, I want to do everything for my children, which is why Danielle and I formed the Foundation. Our goal is to raise money through various activities in order to give our son everything he needs. Ideally, I would want him to be free of this disease, but I also know that a cure is still a long way off.

What the Foundation has given us to date is priceless. Our hearts are filled with love and warmth from the tremendous involvement of family, friends, neighbours, colleagues, acquaintances and complete strangers.

I therefore want to thank everyone for their commitment, time, energy and kind and supportive words and gestures.

Together with these fantastic board members, we will make every effort to raise as much money as possible for the benefit of Stichting TEUN.

I am proud of my lovely family, my strong wife and my terrific boys Pepijn and Teun. I am so proud to be your husband and father.

Erik

Vice-chairman:

Toine de Kort

Teun’s neighbour

Hello, my name is Toine de Kort. I’m married to Rian and have a son and a daughter, Roy and Kim. I’m Erik and Danielle’s neighbour. Delightful, naughty little boys that I see growing up.

I remember, as if it were yesterday, when some doubts started arising about Teun’s health and the uncertainty that that entailed for the whole family. I find it very sad that Teun can’t move about like his brother! I am a real football enthusiast and I am sorry that Teun cannot play football like other children of his age. We went to a football match together and it was wonderful to see how much he enjoyed it. I also took him to the fire department and he was allowed to sit in the fire truck. We really enjoyed it, together with Erik and Pepijn! We will certainly go places together more often.

Consequently, I did not hesitate for a moment when Erik asked me if I wanted to be on the board of “Stichting TEUN”. I am committed to raising as much money as possible for the Foundation so that Teun receives the treatment and equipment he needs to keep moving around as much as possible! Furthermore, I am fully dedicated to raising funds so research can be done on Teun’s disease (Emery- Dreifuss muscular dystrophy). I definitely intend to contribute to the setting up of campaigns and activities to raise money – because a lot of money is needed!!!!

Greetings from neighbour Toine

Secretary:

Jelko Sweegers

Erik’s best friend

My name is Jelko Sweegers and many years ago Erik and I were at college together. Our studies took place at the Sports College, where we graduated as gym teachers. After graduation I moved to Zeeland, but always kept in touch with Erik and Daniëlle.

In Zeeland I received news about the birth of both boys, Pepijn and Teun. I too became a father. I got to know Teun and Pepijn as pleasant, sweet and cheerful boys (they still believe that all of Zeeland is mine!). I empathised very much with the family when it became clear that something was wrong with Teun’s physical development. This touched me deeply, because as a parent you feel how heart wrenching this must be. It is even more affecting on a personal level, because as a sports enthusiast I believe that a child should have the opportunity to move about and play sports in the way he wants. As this is unfortunately not possible for Teun, I want to help where I can.

My goal is to try and raise a lot of money so that Teun can move as often and as much as possible. In addition, by raising funds I can also support research into Emery-Dreifuss muscular dystrophy. In April I will walk 42,195 metres with Erik in the Paris marathon. I hope that these steps will generate a lot of money, after which we can start thinking about the next “steps” to raise money. Will you help too?

Jelko Sweegers